Thursday, April 1, 2010

Light on the subject

Put a little light on the subject. How many times I said this, I do not know. My child would try to read in the dark. My older children had eye problems with 20/20 and 20/15 vision. Eye problems can mean so many things. A child who needs glasses can often figure out that others can see things he or she cannot. When he or she see others copy off the school board and he or she cannot, it is often obvious help is needed.
The child or adult with dyslexia or Scotopic Sensitivity Syndrome (SSS) or Irlen dyslexia often cannot tell you there is a problem. He or she does not know that everyone else does not see like he or she does. When he or she looks on her neighbor's paper it looks like his or hers. Teachers and parents also do not know to ask if SSS could be a problem. I would like to share what my son wrote about SSS.
Dyslexia combined with Scotopic Sensitivity Syndrome makes it a challenge to read, write, draw, do math, take tests, read music, spell or take notes. It is hard to explain to the music teacher that the notes move and you are not sure which ones to play. Reading by the Colors by Helen Irlen, The Gift of Dyslexia, the Del Kennedy interview and Internet research have helped me investigate Dyslexia and SSS. My own struggles and successes are also helping me help others.
My project has come about because this year, I have been found to have Dyslexia and Scotopic Sensitivity Syndrome. It is embarrassing to try to explain to others why I wear a hat in band practice or wear dark glasses at the concert, why I will not wait tables at the chili supper, why I cannot finish reading the list of things to do while helping decorate, and why I do not try to learn to dance. I will try to show why in this report.
When we were decorating for the chili supper, the person in charge became irritated with me and said, "Just get over it!", when I told her I could not finish the list. Her son seemed to think I was being rude to his mom because I would not co-operate by finishing the list. I could not make them understand I could no longer read it. At the chili supper, I refused to wait tables because I could not tell exactly where the floor is. The carpet has a pattern and the pattern swirls when I look at it. Carrying food across a floor that appears to swirls does not sound like a good idea to me. I also do not try to learn to dance because the floor is swirling. It is embarrassing to have others think I am stupid when I cannot finish my work in speech class and the teacher thinks I am just not c0-operating. Often adults will not let me help with what I can do because I cannot do other things they ask me to do. Trying to explain to my parents is difficult also because they are just now beginning to understand what I see. I have tried different color glasses, highlighters, papers, been tested by Evelyn St. John at Rogers State University and had adults read to me when I could not longer focus.
The difficulty with my project is that people do not know what I am talking about. Also, it takes more time to read the materials or have them read to me. Typing is also a big challenge. Reading by the Colors by Helen Irlen helped me by explaining that there is a name for the kind of Dyslexia I have. The Gift of Dyslexia showed me that some people who have dyslexia are also geniuses.
I have learned to turn on all lights in my room and turn the book a certain way so the shadow is right for me to read. When it is cloudy and gloomy there is no glare to hurt my eyes. A sunny day has a glare on everything. I was excited when I found a line reader in a color I could use to read. After reading for 11 minutes my eyes hurt so much I could no longer read. With my glasses I can often read for 2 to 3 hours. I also no longer get carsick when I wear my glasses. Glare protection is needed by 97% of people with SSS.
The interview with Del Kennedy helped me understand how to explain what is happening. The only legal pad in blue (the color I need) is too light. Del Kennedy has been in the paper several times. He learned to read at age 59 when it was discovered he needed yellow glasses to learn to read.
If you know anyone who sstruggles in school please help them research this information to see if it will help.

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